Wednesday, October 30, 2019

What's the Reason? A Book Review

(Topic: book, illness, grief, what to say)

Image credit: Kate Bowler's Website


Book:
Everything Happens For A Reason: And Other Lies I’ve Loved
 
By Kate Bowler

This is probably not a book I would have picked up on my own.

Lately, I read mostly fiction, if I read. I don't read nearly as much as I used to - picking out a book that's "safe" (not heavy emotion, and no pregnancy or infant death...) is a lot of work, and then having it be good, engaging, something that has me coming back to finish it... I struggle with reading more than I used to. So I pick a lot of light stuff, when I read.

This book isn't light.

It's not written densely, and it doesn't delve super deeply into the topics it brings up, but it involves very big, very deep topics, so even a shallow treatment is heavy at times. My husband has an interest in books addressing death (and our society's reaction), religion, and philosophical exploration. This book touches on all those themes. He read it, and chatted with me about it, to the point that I was curious and interested to read it for myself.

The author has cancer, and is struggling with religious questions, and life questions, and generally with life, and whether or not she's dying. She has a toddler son and a husband, and she loves them both dearly.

She addresses aspects of her upbringing and research (on the "prosperity gospel": in short, the idea that if good things happen, God is blessing you, and if bad things happen, God's either testing you or punishing you. This perspective doesn't let the earth be a broken place with happenstance or "shit happens", and doesn't allow room for God to grieve with you. I'm not an adherent of the prosperity gospel perspective, but it's pretty pervasive in American culture and thinking). She also addresses aspects of the Mennonite traditions, because she grew up surrounded by a Mennonite community and married a man who grew up in that community. The Mennonite community appears, from her comments, to view suffering as a tragic part of life on earth, and something that people should be supported through.

What's interesting, is that she wrote this during. This book seemed to me to be a way she was processing. Processing what was going on to her, but more, processing how she sees the world and God, and what she actually thinks about what people are saying to her.

She came to a lot of similar conclusions to what I found. People like to say things that "fit" with what they think, usually from a place where they haven't been through senseless tragedy. They want the tragedy they see us going through to fit the "rules" they think the world runs by (side note: it doesn't. The world is arbitrary, and has accidents, and illness, and senseless tragedy). Her book seems to show that her notion of God resolved to a new (different) clarity, how God is love and not human interpretations of what God is.

She ends the book with two helpful appendixes. Even if you are not interested in the book, pick it up in the bookstore and just read the appendixes before putting it back on the shelf. The first appendix is 10 things not to say to a grieving/ill person. They all fit with the same things I've struggled with people saying to me. The other appendix is a list of things to do, to help. The main theme that comes through is to be with, and not to try to explain to the griever what they are feeling (they already know) or why they are going through it (chances are, there really isn't a good reason, and you cheapen their pain by trying to explain it away).

This book is a quick read, and again, she doesn't go super theological or super medical, or really super technical in any way; this is a fascinating exploration of her own experience and thought process as she goes through a cancer journey.


Yours,

Sarah

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Resource list: Visit my spreadsheet at www.tinyurl.com/infantloss

Tuesday, October 15, 2019

October 15th, Pregnancy and Infant Loss Awareness/Remembrance Day and Wave of Light

(Topic: Pregnancy and Infant Loss, remembrance, grief)

Dear Friends,

Once a year, when October rolls around, the story that is a constant part of my life gets talked about a bit more, and noticed by more people who haven't been through it. This is because October is Pregnancy and Infant Loss Awareness month - it was declared to be so by Ronald Reagan in 1988. October 15th got established as Remembrance Day a bit later, in 2002. Another organization, I believe it was Bear Cares, started promoting a "wave of light" in 2003, the idea being that if people in every time zone light candles from 7pm-8pm local time, a wave of light in memory of babies would flow around the world. In fact, many buildings world wide light up in pink and blue (the colors of the awareness ribbon) for the evening.

This year, the candle we usually light is still packed somewhere, but we had the pleasure of being able to virtually attend a memorial and candle lighting ceremony held by a funeral home, where they lit a candle for us, in memory of Charlie, along with many others.


Last year, I placed candles on the graves of babies buried near Charlie. The backside of the tag had some resources.

The tall candle on the left is the one we usually light for Charlie. Last year I tried to light a candle for every baby I personally know the name of... It got a little out of hand and actually melted my table cover. But even when I don't get a chance to light a candle myself - like this year - I still hold all of them in my heart.

This year was interesting - it still makes me sad to miss Charlie, but it changes. The memory of him in my arms is not nearly as recent as it used to be - it's not less vivid, but I'm more distant from it.

I'd like to share a little piece I wrote on Facebook. I have recently started to realize that while nothing will change the fact that Charlie died, it is starting to be more important to me that he lived, and that he is my son.
Here's what I wrote:

Help me remember my son Charlie. He lived for 9 months inside of me, and Calvin and I got to know him - how he kicked like a little tigger and became our little tiger cub, how he danced to Joshua Bell 's solos. He was alive, and he is our son forever. Then his heart stopped beating, and I still went to the hospital and gave birth to him, and got to hold his beautiful little body. My son lived, and then he died. I loved him from the day we found out we were having him, and the fact he never got to breathe does not negate that he lived. I will love him till the day I die. He would be nearly 3-1/2 now, and I picture him playing his aunt's 1/8-size violin (edited to add: turns out it is actually a 1/16th size). It's one of the many dreams we had to set aside when we had to pick a cemetery plot and a gravestone instead. Help us remember him, and remember that in the United States, 1 in every 160 pregnancies ends in a stillbirth (a baby who dies after week 20 of pregnancy). This is too many. Help spread stories like mine, help mamas and daddies like us remember the children they love but no longer have with them, and support organizations that research prevention and spread knowledge to pregnant mamas.
#stillbirth #pregnancyandinfantlossawarenessmonth #pail #pregnancyandinfantloss #starlegacyfoundation
If you have questions or need resources, I'd be happy to try to help. ❤️ to all parents who have more children than you can see.




Yours,

Sarah

To subscribe, find the "subscribe by email" note in the left column and enter your email there. Links to posts will be emailed directly to you whenever I post them! Nothing else gets emailed.

Resource list: Visit my spreadsheet at www.tinyurl.com/infantloss